The Me In The Mirror

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Writer, Activist And Artist Connie Panzarino Was Born In 1947 With The Rare Disease Spinal Muscular Atrophy Type Iii, Formerly Called Amytonia Congenita. Throughout A Childhood Filled With Both Pain And Joy, She Strove To Define Herself: I Knew I Was Different. Now I Had A Name For The Difference, Like Being Italian Or Jewish. I Was An Amytonia. I Didn't Understand If That Meant That I Would Never Walk, Or If All It Meant Was Lack Of Muscle Tone. I Didn't Know That Most Children With This Disease Die Before They're Five Years Old. In This Deeply Moving And Eloquent Memoir, Connie Panzarino Describes Her Decades Of Struggle And Triumph, Her Relationships With Family Members And Long-time Lover Ron Kovic (author Of Born On The Fourth Of July), Her Eventual Turn To Lesbianism, And Her Years Of Pioneering Work In The Disability Rights Movement. Filled With Spirit, Passion And Defiance, The Me In The Mirror Tells The Story Of A Remarkable Life. Connie Panzarino.

Author : Panzarino, Connie , 1947-

Publisher : Seal Press

Published Year : 1994

Edition : 1

Format : print - Paperback, 260 pages

Subject : HealthPanzarino, Connie , 1947-, Homosexuality, Female, Disabled Persons, Muscular Atrophy, Spinal, Spinal muscular atrophy--Patients, Spinal muscular atrophy--Patients--United States--Biography, Women with disabilities, Women with disabilities--United States--Biography, Lesbians, Lesbians--United States--Biography, RC935.M95 P36 1994, WE 550 P199m 1994, 362.1/9674/0092 B

Language : English

Dimensions : p. cm.

ISBN : 1878067451

ISBN13 : 9781878067456


Overview :

Writer, activist and artist Connie Panzarino was born in 1947 with the rare disease Spinal Muscular Atrophy Type III, formerly called Amytonia Congenita. Throughout a childhood filled with both pain and joy, she strove to define herself: "I knew I was different. Now I had a name for the difference, like being Italian or Jewish. I was an Amytonia. I didn't understand if that meant that I would never walk, or if all it meant was lack of muscle tone. I didn't know that most children with this disease die before they're five years old." In this deeply moving and eloquent memoir, Connie Panzarino describes her decades of struggle and triumph, her relationships with family members and long-time lover Ron Kovic (author of Born on the Fourth of July), her eventual turn to lesbianism, and her years of pioneering work in the disability rights movement. Filled with spirit, passion and defiance, The Me In The Mirror tells the story of a remarkable life.